02-28-2022, 09:00 AM | #89 |
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Out of nowhere, I just remembered this post and wanted to check on you guys almost a year later! I hope the news is still good with the family. God bless.
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02-28-2022, 12:07 PM | #90 |
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Thanks for reaching out m4mehdi. While it certainly feels like a year in some ways, in other ways the time has flown by. It's actually only been about 3.5 months. Phase 2 technically ends today and she's got an appointment tomorrow where we'll do labs and determine if her numbers are good enough to get another bone marrow biopsy and start Phase 3. I was holding out on an update until we get that biopsy result. Phase 3 lasts for 2 months and will require some overnight hospital stays due to the medicine that she'll be receiving.
Thankfully she's really been doing great. She's needed two blood transfusions and platelets once during this phase which is very typical. She has had mild, if any, side effects so that's a real blessing. She did end up with a blood clot in her arm which requires her to get 2 blood thinner injections every day for 3 months. Do the math. That's 180 shots. While they're not fun, she rarely complains and just gets it done. We've had a break from them this past week which has been great. Overall her doctor says that she's right where she's supposed to be. My sincerest thanks to everyone who's been keeping her in their thoughts and prayers. It means the world to all of us. I'll never be able to thank you enough.
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02-28-2022, 01:37 PM | #91 | |
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02-28-2022, 01:39 PM | #92 |
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Absolutely, positive thoughts and prayers!
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02-28-2022, 02:50 PM | #95 |
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Sincere prayers from my family to yours buddy. Godspeed for your daughter.
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02-28-2022, 03:57 PM | #96 |
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My prayers and wishes are with your daughter, yourself and your family. We've got your back - as far away and dispersed as we are. 🙏🏽🤜🏽❤️
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02-28-2022, 05:42 PM | #97 |
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Here she is - all smiles. I love her so much.
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02-28-2022, 07:15 PM | #98 |
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I have a 17 year old daughter who turns me to jello every time she says “Dad”.
I have an idea of how you feel about your girl. Hopes, prayers, good wishes and all the best to both of you. |
03-01-2022, 01:42 AM | #100 |
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I only recently joined this forum, but I'd like to tell you I'm thinking of you, your daughter, and your family. This is a car forum, but we parents know we would trade all the cars in the world for our children. You and your daughter are now on a different part of your lifelong journey, and I wish you every bit of strength, patience, and grace as you walk through it together. Good luck, from a fellow parent.
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03-01-2022, 01:09 PM | #101 |
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Quick update. As anticipated, she didn't make counts today so the biopsy and Phase 3 are on hold. This is 100% expected. Her doctor even said she would have been surprised if my daughter made counts.
She'll continue to recover and we'll try again next Tuesday. Thanks for everyone's concern and well wishes.
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03-02-2022, 09:58 AM | #102 | |
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03-02-2022, 10:30 AM | #103 | |
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03-16-2022, 11:42 AM | #104 |
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I'm having a real hard time formulating this post due to the tears of joy in my eyes.
We just got official word that my daughter's spinal fluid and bone marrow biopsy from Monday are both negative for B-Cell Leukemia! I can't tell you how much we've wanted to hear those words. Phase 3 starts today and her official end-of-treatment date is 3/16/2024. Thanks, again, to this incredible community for your support throughout this journey. You all are awesome!!
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03-16-2022, 12:50 PM | #105 | |
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03-16-2022, 12:56 PM | #106 | |
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That's great to hear! All the best to your family.
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03-16-2022, 05:11 PM | #108 | |
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03-16-2022, 05:32 PM | #109 |
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Thank you so much. I couldn't be more excited about her future.
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