03-01-2023, 07:09 PM | #243 | |
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BTW - no new Lego sets recently.
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03-01-2023, 07:14 PM | #244 |
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I couldn't agree more and it's always great to give back where you can. I really hope that this is something that she'll continue to do throughout adulthood.
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03-01-2023, 07:47 PM | #245 |
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Same with regards to Lego. Which my wallet and my wife are happy with.
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03-01-2023, 09:35 PM | #246 |
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So happy and so proud of you Jo
Give mum and dad a big hug for us and please, please, give two hugs to each of those lovely four-legged angels May every breath bring you joy 🤗🤗🤗
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03-27-2023, 06:57 PM | #247 |
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Johanna recently entered the Atlantic Institute SC's Creativity Contest. The theme is "Embracing Diversity" and the goal is to create something that shows what diversity means to you. She has a lot of dolls called "Smart Dolls" and did a photo shoot with them.
If you have a Facebook account, and don't mind, would you please consider voting for her entry by liking her photo which you can find here. For those without a FB account, here's her photo so you can see it. She did a great job! Thanks!
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03-27-2023, 07:12 PM | #248 | |
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03-27-2023, 08:10 PM | #249 | |
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03-28-2023, 06:38 AM | #250 |
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She has my vote, now and forever
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03-28-2023, 08:18 AM | #251 | |
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06-28-2023, 08:22 PM | #252 |
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Greetings, everyone.
First my apologies for taking so long to provide an update. Things have been a bit crazy. Johanna is doing great! Not only did she win the "Most Liked" segment of the art competition that she entered, but she also won first place in the judged competition as well. My sincerest thanks for you taking the time to support her. She also started taking bass guitar lessons again so that's another step toward normalcy. We started the next three month set of treatment yesterday. She had another lumbar puncture and is having a bit of a rough day pain-wise today. She's had ~19 of these since her diagnosis and it's been hit-or-miss how they have impacted her. Today it's a hit. On the hugely positive side though, we got another negative test result so she's progressing exactly like she should be. She's taking it all in stride and enjoying her summer before starting high school in early August. I wish I could say that I'm as nonchalant about it, but I'm not. Most days things are as they were prior to her diagnosis. Other days I'm just a wreck. Can't explain it. It's just the rollercoaster that I'm on. All that matters is that she comes out on the other side of this the normal healthy person that she deserves to be. Johanna and her mom spent last weekend in Charleston where they sent pics trying to convince me to get her a new Macbook Pro, iPhone, and Mini Cooper. Can't blame her for trying. Quick update on my mom and this is where it gets crazy. Initially she was diagnosed with early dementia. After 32 days in a local hospital she ended up testing positive for cryptococcal meningitis. This really stumped the doctors for quite a while because this isn't something that's normally seen in people with a healthy immune system. She spent a couple of weeks basically in a coma and we ultimately transferred her to the Medical University of SC in a last ditch effort to save her. She spent a couple of weeks down there and made great progress and ended up in a rehab facility back at home. She spent 4 days in rehab and then fell and broke her right hip. ugh. She had surgery the next day and is back to rehab trying to build up her strength to be able to go home. She's still having some cognitive issues which, we hope, will improve but there's no guarantee. She's going to have some cognitive defect due to the meningitis having done some damage to her brain. Which just don't know how much yet. Sorry for this being a bit long. We continue to appreciate each and every one of you for keeping us in your thoughts. All the best from our family to yours. - Brian
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06-28-2023, 10:27 PM | #254 | |
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Glad J is doing well overall and continues to take it all in stride. Sorry to hear about your mom, Brian. It’s really strange how life comes at us with these twists and turns sometimes. Hopefully she can have as good of a recovery as possible.
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06-29-2023, 06:34 AM | #255 |
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Thanks so much. Like all of us, my mom has good days and bad days. We only hope for more good ones. We're all stronger in the end.
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07-02-2023, 06:29 AM | #256 |
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So happy to hear Jo is doing so well. I hope she'll be reaching great heights in her every endeavour.
I'm glad you're mum's now been properly diagnosed, though I'm sorry about her hip. I'm sure, over time, she'll be on top of everything, step by step. You are a Super Family 💯
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07-24-2023, 08:48 AM | #257 |
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Dear Johannah and family
I hope you're all enjoying summer to the max. Just a little note to let you know, Dozer has now become our State's official mascot and waiting for your visit 🐨😉 We can't wait You may have to magnify the image to see what I mean
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07-24-2023, 09:06 AM | #258 |
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Stay strong, little one 🙏
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07-26-2023, 08:29 PM | #259 |
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So cool. She's so in love with the koala stuffed animal that you sent her. She's also guarding those Tim-Tams like they're gold!!
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07-26-2023, 08:38 PM | #260 | |
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How precious are those smiles Please give her a big hug from us all 🤗
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07-27-2023, 06:53 PM | #261 |
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Which one is her favourite TimTam
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07-27-2023, 07:47 PM | #262 |
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All of them! If I had to pick one, it'd be the dark chocolate. Don't spoil her!
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07-27-2023, 08:00 PM | #263 |
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I was thinking ... Christmas isn't that far away 😉
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07-28-2023, 09:28 AM | #264 |
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Everyone is too kind.
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